I was able to go to Dallas to the Heartbeat Clinic 1 week ago to see a cardiologist that specializes in Pots (Postural Orthostatic Tachycardia Syndrome). He is a wonderful doctor and all of his staff was very kind. It was so great to be in a doctors office where you know that you will be understood and not looked at like your crazy. I was able to get answers as to why I have Pots and that was such a relief. I have Ehlers Danlos Syndrome & I am going to go to a genetic specialist to get some tests ran to find out what type I have. This is very important because it is genetic and my kids & siblings have a 50/50 chance of having it also. I am prepared for my illness but not for my kids to have to go through what I am going through.
Here are a coupke of links that you can go to if you want more information on these disorders. www.dinet.org www.ednf.org
There needs to be more awareness raised for Pots & EDS. They are both chronic illnesses & can be very dabilitating.