"That is why, for Christ's sake, I delight in weaknesses, in insults, in hardships, in persecutions, in difficulties. For when I am weak, then I am strong"
2 Corinthians 12:10

Wednesday, August 10, 2011


I was able to go to Dallas to the Heartbeat Clinic 1 week ago to see a cardiologist that specializes in Pots (Postural Orthostatic Tachycardia Syndrome).  He is a wonderful doctor and all of his staff was very kind.  It was so great to be in a doctors office where you know that you will be understood and not looked at like your crazy.  I was able to get answers as to why I have Pots and that was such a relief.  I have Ehlers Danlos Syndrome & I am going to go to a genetic specialist to get some tests ran to find out what type I have.  This is very important because it is genetic and my kids & siblings have a 50/50 chance of having it also.  I am prepared for my illness but not for my kids to have to go through what I am going through.  

Here are a coupke of links that you can go to if you want more information on these disorders. www.dinet.org www.ednf.org 
There needs to be more awareness raised for Pots & EDS.  They are both chronic illnesses & can be very dabilitating.       

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