Heavy Heart.....

It is with tears in my eyes and a heavy heart that I write this post. I have suffered extensive testing 13 hours from my home for 2 weeks. I have put financial burden's on my husband's shoulders for 2 years. I have cause severe anxiety in my youngest son's life from having to watch his mom pass out all the time, have heart rhythm problems, and having to call 911 several times because of it all.  I cannot be alone because of all of this.  I have had a fractured rib, concussion, hurt shoulder from passing out all in 3 months time.  I am one hot mess!!!!

I received a call this morning from the Mayo Clinic where I went a week ago and all my GI test came back normal.  No cancer or Crohn's or Ulcerative Colitis.  I just have IBS.......There is NO JUST IBS.  It is a very disabling syndrome.  It is aggravating my heart issues, and my POTS.  

All of this, the doctor at the Mayo Clinic agrees, is from Ehler's Danlos Syndrome.  I have seen a genetic doctor in Texas to confirm this. I have posted about this before but now I guess it is real.  Not that I thought is wasn't real then it's just that there was a "maybe not" still there. 

How am I going to do this? How can I keep living like this? I am so tired and exhausted from the pain, passing out, living everyday like a have a stomach virus. (cause that's what it feels like) I can honestly say, I am just tired.

My God is with me. My God is loving and faithful. My God knows my heart and my sorrows. My God has a plan for me. My God is merciful and mighty. I WILL continue to Praise Him in this horrible season of my life. He is my comforter, my refuge, and my strength. HE is all I need!!!!! How great is our God? He is EVERYTHING. He will never leave our side. I have to trust in him. 

HE IS MY HEALER

 

Day 1 of Mayo Clinic

It is so beautiful at the Mayo Clinic.  They have made it a place of peace and serenity and that makes such a difference to people who come here for help.  Everyone is so nice and they all help you and make you feel like you are the only patient that is important.  It's amazing. Here is a picture of blown glass hanging from the ceiling in the lobby of the Gonda Building:

If you look really close you will see that the walls are marble.  The floors are also.  

My first appointment went well.  They are fixing to put me through A LOT of tests everyday (expect the weekend) until Thursday the 16th. On Friday the 17th I will see my main doctor one more time and he will let me know what they found and what the plan is.  We will head home after that appointment. I am very scared about all the tests.  I mean they are gonna work me up from head to toe.  

I will stick a few more photo's up so you can see some of the pretty buildings here.  Thank you all for the prayers.

 

 

 

Day 1 of Mayo Clinic Trip

Day 1 of our Mayo Clinic trip is behind us.  We drove to Hannibal, MO and got a hotel for the night.  Poor Cory has driven 7 1/2 hours today.  He is such a great man.  He does so much for me and hardly ever complains. I couldn't ask for a better man. 

I am missing my "buddy", Cayden so much.  We have our morning routine down and he will not understand why GiGi isn't there to share early morning time with.  Here's a photo of him that Cristina sent me this afternoon so I could see him.  

He's so precious.  He is my inspiration to push through all the pain and sickness.  If he (a small little baby) can fight so hard everyday of his short life than I can fight through this.  

Day 2 of travel starts at 9 am and we have 6 1/2 hours left to drive.  I will be updating on Facebook often and here on my blog.  I am taking lots of pictures so I can remember this experience and see all of God's beautiful creations on the way. Here are a few I took today. 

 The Memphis Pyramid (Memphis, TN)

Getting off the Kansas City exit

 

Cory being silly at the McDonald's in Sikestan, MO
 

God's beautiful creations

You, my Lord, are my everlasting God, the creator of the ends of the earth.  You will not grow tired or weary, and your understanding no one can fathom.  You give strength to the weary and increase the power of the week.  Even youths grow tired & weary, & young men stumble & fall; but when I hope in You, O, Lord, my strength will be renewed.  

(A prayer I made using Isa. 40:28-31)